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更新：53分钟/2026-07-31
剧情简介
The film chronicles the life of author Thorvald Steen, who has facioscapulohumeral muscular dystrophy; a rare waste disorder that gradually and irreve
The film chronicles the life of author Thorvald Steen, who has facioscapulohumeral muscular dystrophy; a rare waste disorder that gradually and irreversibly paralyzes his body. The disease, however, has never stopped Thorvald. He is still an active public debater, freedom of speech advocate, author, and cultural communicator, although his ski jumping days are over. Through Thor...
